18-month-old suffers from Haemophilia and TOF

18-month-old suffers from Haemophilia and TOF

Family, Welfare Society seek support to treat rarest case

Pak Chronicle Report

Karachi

The first case of a child suffering from haemophilia and heart disease has come to fore which needs the support of philanthropists on humanitarian grounds to treat the rarest case.

The 18-month-old child is suffering from double pain. Haemophilliac Muhammad Ahmed suffers from the complex congenital heart disease TOF, Tetrology of Fellot, as well.

The parents have appealed philanthropists for help in providing treatment to their only son.

According to details, Saman Afif, a resident of Gulistan-e-Jauhar, along with her 18-month-old child and husband Afif Ahmed, has reached the treatment center of Haemophilia Welfare Society in Karachi for treatment of her child.

Addressing a press conference at the center on Tuesday, along with President Haemophilia Welfare Society Karachi Raheel Ahmed and hematologist Dr Munira Burhani, she said that her son Mohammad Ahmed was suffering from congenital heart disease TOF, Tetrology of Fellot. Within a few months of birth, we learned that he had hemophilia, a bleeding disorder.

Mohammad Ahmed has four heart defects. Doctors will operate on him in three stages. The mother said that the child’s health suddenly deteriorates, he starts to stop breathing and faints.

Saman Afif appealed philanthropists to help save her only son Muhammad Ahmed.

The mother said that the family had spent whatever money they had with them.

Moreover, Founder President, Haemophilia Welfare Society Karachi, Raheel Ahmed talking to media said that Muhammad Ahmed will have three operations in the span of four years.

He said that complete treatment of Mohammad Ahmed will cost around Rs 12.5 million, adding that only injections Factor-9 will cost more than Rs 10.04 million.

Raheel Ahmed said that the Haemophilia Welfare Society would provide anti-haemophilia Factor 9 injections worth Rs 2 million with its own funds.

He further said that it is impossible to manage the amount required for the treatment without the help of philanthropists.

Dr Muneera Burhani, a hematologist, said that the affected child needs a hospital where all the departments are available for treatment, during the operation and it will be a big challenge to stop the bleeding after surgery.

The presser was also attended by the child’s father Afif Ahmed, General Secretary Haemophilia Welfare Society Shahid Dawood and Fakhar Alam Zaidi.

 

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